Patient Perspective - CIRM Grantee Meeting 2020
The patient experience should be front and center at every scientific conference; hearing their stories, seeing their faces gives meaning to the research.
Stem Cells, Cancer, and Advocacy: A Patient Perspective with Phuong Ly-Gallagher
Phuong Ly-Gallagher was only 29 when diagnosed with colorectal cancer. In this compelling interview, she shares her journey from patient to survivor and advocate. Recorded on 09/14/2020.
Cardiac Stem Cells: A Patient Perspective with Pat Farrant
After a heart attack and triple bypass surgery at age 60, Pat Farrant learned he had an inherited heart condition. He now dedicates his time to raising awareness about heart disease an its warning signs.
Stem Cells and Huntington's Disease: A Patient Support Perspective with Frances Saldaña and Charissa Brown of HD Care
Frances Saldana lost her three children to Huntington's disease - a devastating neurodegenerative condition with no cure. Saldana turned grief into action and co-founded HD-CARE, an organization dedicated to advancing Huntington's Disease research and clinical care. In this interview, she shares her story of advocacy and innovation. Recorded on 09/14/2020.
Cancer Stem Cells: A Patient's Perspective with Sandra Dillon
At 28, Sandra Dillon was diagnosed with myelofibrosis, a life-threatening blood disorder that can lead to acute leukemia. After participating in clinical trials and cutting edge treatments, Dillon has a deep appreciation for personalized medicine and genomics. Recorded on 09/15/2020.
Stem Cells and Spinal Cord Injury: A Patient's Perspective with Jake Javier
An accident left Jake Javier paralyzed from the chest down the day before his high school graduation. Through a clinical trial, Javier received a transplant of 10 million stem cells and regained use of his arms and hands. Javier shares his story of resilience, science, and hope.
Stem Cells and Eye Diseases: A Patient Perspective with Kristin MacDonald
Retinitis Pigmentosa (RP), a genetically inherited disease that affects the photoreceptors at the back of the eye, leads to blindness. Kristin Macdonald was told she had RP at age 31 - a diagnosis that vaulted her into advocacy. She shares her story of living with blindness, participating in clinical trials, and hope for the future. Recorded on 09/14/2020.
Blood and Immune System Disorders: A Patient Perspective with Alysia Vaccaro
In 2012, Alysia Vaccaro's newborn daughter, Evie was diagnosed with Severe Combined Immunodeficiency (SCID). Children with SCID lack a functioning immune system so even a simple cold can be fatal. After hearing about a potential gene therapy developed by Dr. Don Kohn at UCLA, Vaccaro enrolled Evie in a clinical trial. Today, Evie is a thriving 8 year old with a healthy immune system. Vaccaro shares a bit of Evie's journey and the impact that stem cell research has had on their...

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